tag:blogger.com,1999:blog-19798349.post694316790871350940..comments2024-03-22T12:20:48.920+00:00Comments on open...: Why You Should Boycott the UK BiobankGlyn Moodyhttp://www.blogger.com/profile/04436885795882611585noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-19798349.post-10646383807995161772012-04-02T21:54:00.602+00:002012-04-02T21:54:00.602+00:00It doesn't save lives or help security:
http:...It doesn't save lives or help security:<br /><br />http://www.guardian.co.uk/uk/2008/may/06/ukcrime1<br /><br />all it does is reduce privacy - it's a total failure.Glyn Moodyhttps://www.blogger.com/profile/04436885795882611585noreply@blogger.comtag:blogger.com,1999:blog-19798349.post-80490400504323012102012-04-02T21:20:56.702+00:002012-04-02T21:20:56.702+00:00Why do you object to CCTV? Something proven to sa...Why do you object to CCTV? Something proven to save lives and provide security? How many people have been harmed by their presence? Sure you can argue it drives crime elsewhere but overall crime is reduced.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-19798349.post-90518936039512453422012-04-01T07:59:38.621+00:002012-04-01T07:59:38.621+00:00sure, it's a personal decision to weigh up the...sure, it's a personal decision to weigh up the benefits and risks.<br /><br />And yes, I most certainly do object to CCTV cameras in the streets...Glyn Moodyhttps://www.blogger.com/profile/04436885795882611585noreply@blogger.comtag:blogger.com,1999:blog-19798349.post-35880901985733741332012-04-01T07:27:19.891+00:002012-04-01T07:27:19.891+00:00Who cares? They can have all the genetic info the...Who cares? They can have all the genetic info they like about me and can pass it freely around the world. I wouldn't care if it was completely open either. The value of understanding my genetics would compensate for any over zealous insurance company ( which I doubt would happen despite scattered examples). This obsession with privacy is worrying. Do you also object to CCTV cameras in our high streets?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-19798349.post-4057234002739176822010-06-21T14:58:14.783+00:002010-06-21T14:58:14.783+00:00I applaud your public spirit - and hope they don&#...I applaud your public spirit - and hope they don't decide to play lose and free with your info...Glyn Moodyhttps://www.blogger.com/profile/04436885795882611585noreply@blogger.comtag:blogger.com,1999:blog-19798349.post-85928544349107547162010-06-21T14:54:19.242+00:002010-06-21T14:54:19.242+00:00I've received an invitation. I've said yes...I've received an invitation. I've said yes. It might help medical science and if they can find any interesting information about me they're more than welcome to it.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-19798349.post-61076150840087074862010-01-13T09:33:34.473+00:002010-01-13T09:33:34.473+00:00Thanks for that update; as you rightly say, they d...Thanks for that update; as you rightly say, they don't seem to have got the hang of this privacy lark, do they?<br /><br />Doesn't inspire confidence.Glyn Moodyhttps://www.blogger.com/profile/04436885795882611585noreply@blogger.comtag:blogger.com,1999:blog-19798349.post-25430198949432471292010-01-13T09:26:47.584+00:002010-01-13T09:26:47.584+00:00There are indeed some serious privacy concerns her...There are indeed some serious privacy concerns here. I’ve just had my invitation letter. When it comes to reassuring any concerns I may have had about protecting my privacy, they didn’t get off to a good start.<br /><br />Apparently they got my name, address, and date of birth from the NHS.<br /><br />Excuse me?<br /><br />I don’t remember giving the NHS my permission to share that kind of data with third parties. I shall be finding out who the NHS data controller is and having a word. They claim that it’s compliant with the data protection act, but I find that hard to believe.<br /><br />Sorry, this may be a worthy research project, but they have just totally destroyed any chance they may have had of my trusting them.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-19798349.post-81667596367586445752009-05-20T13:36:52.177+00:002009-05-20T13:36:52.177+00:00I haven't been invited yet, but if I am, I will ce...I haven't been invited yet, but if I am, I will certainly refuse for the reasons noted.<br /><br />The current UK political climate of mass surveillance, ID cards, databases etc. is not the right one for this kind of endeavour, however laudable it is in theory.Glyn Moodyhttps://www.blogger.com/profile/04436885795882611585noreply@blogger.comtag:blogger.com,1999:blog-19798349.post-36698772699360418702009-05-20T13:28:05.082+00:002009-05-20T13:28:05.082+00:00thanks for the info - i just got an invite to "the...thanks for the info - i just got an invite to "the plan" - and am surfing around looking for non biobank web site information.<br /><br />there certainly are a few questions to be asked.<br /><br />will i help ? - not sure - given the current faith in the establishment, society has a right to legally binding contracts under circumstances such as these - not sure if they'll be offering one.Anonymousnoreply@blogger.com