Showing posts with label public data. Show all posts
Showing posts with label public data. Show all posts

01 June 2007

Maybe Genomics is Getting a Little Too Personal

So Jim Watson's genome will soon be made public. But not all of it:

the only deliberate omission from Watson's sequence is that of a gene linked to Alzheimer's disease, which Watson, who is now 79, asked not to know about because it is incurable and claimed one of his grandmothers.

The trouble is, the better our bioinformatics gets, the more genes we will be able to analyse usefully, and the better our ability to make statistical predictions from them. Which means that more and more people will be snipping bits out of their public genomes in this way. And which also means that many of us will never put any of our genome online.

09 March 2006

The Dream of Open Data

Today's Guardian has a fine piece by Charles Arthur and Michael Cross about making data paid for by the UK public freely accessible by them. But it goes beyond merely detailing the problem, and represents the launch of a campaign called "Free Our Data". It's particularly good news that the unnecessary hoarding of data is being addressed by a high-profile title like the Guardian, since a few people in the UK Government might actually read it.

It is rather ironic that at a time when nobody outside Redmond disputes the power of open source, and when open access is almost at the tipping point, open data remains something of a distant dream. Indeed, it is striking how advanced the genomics community is in this respect. As I discovered when I wrote Digital Code of Life, most scientists in this field have been routinely making their data freely available since 1996, when the Bermuda Principles were drawn up. The first of these stated:

It was agreed that all human genomic sequence information, generated by centres funded for large-scale human sequencing, should be freely available and in the public domain in order to encourage research and development and to maximise its benefit to society.

The same should really be true for all kinds of large-scale data that require governmental-scale gathering operations. Since they cannot be feasibly gathered by private companies, such data ends up as a government monopoly. But trying to exploit that monopoly by crudely over-charging for the data is counter-productive, as the Guardian article quantifies. Let's hope the campaign gathers some momentum - I'll certainly being doing my bit.

Update: There is now a Web site devoted to this campaign, including a blog.